Kermilya’s Journey- Be Encouraged

Continue reading “Kermilya’s Journey- Be Encouraged”

Advertisements

Christina’s Journey: Phase 4

20150309_135717000_iOS

I am preparing for my Autologous Stem Cell Transplant procedure since I had collected enough bone marrow, but first I have to take care of home.  Phase 4 in chronic illness of Hodgkin’s Lymphoma will be focusing on having relationships with your husband, wife, and/or life partner while going through your chronic illness.  Having a chronic illness you automatically think it should be all about you but it is not.  You must learn to have the strength to balance yourself and others, especially your caregivers.  Being married you have to be extra sensitive to your partner’s needs and wants.  I have the most giving and selfless husband that not being able to do my wifely responsibilities was crushing and I would feel like a failure to some degree.  I was taught by my parent’s marriage that you take care of your mate; it helps you grow closer to one another and develop a deeper respect for your marriage.

During the time of my preparation of being admitted into the hospital for my transplant I was making a list of things to accomplish for my household.  David is the sole provider for the family at this time and my job/duty is to make his home front as stress free as possible.  David and I had to learn how to communicate effectively with each other in order to become successful in a stress free home.  You can not approach situations in the same manner as you did in the past before being diagnosed with a chronic illness.

  1. You can not wear your feelings on your shoulders, which can be challenging at times.  When you are sick your mood goes from one extreme to the next because of your medications and that you just do not feel well.  You must become more understanding and adapt to your “new normal.”
  2. You must be a good listener.  We all know the saying: “God gave us two ears and one mouth for a reason.”  Always be attentive, so you can squash any uncertainty and do not sweat the small things.  Some “issues” are not issues and are a waste of time to discuss so BE QUIET.
  3. Always show that you love your mate and say you love them.  You will do and say mean things just because of #1 occurring.  Apologize in advance and do not dwell, move on.

I always strive to go beyond the call of duty for my husband because he deserves it.  During the month of February of 2015, I concentrated even more on David.  I was going to be out of the home for two months (30 days in the hospital and the last 30 days in Gastonia with my parents) for my stem cell transplant.  He had already and continues to sacrifice a lot for me and I make sure I do the same even to this day.  As I stated in the beginning you must keep the balance.  When one is weak the other must be strong and vice versa.  I always pray more for my husband and family/friends than for myself because it is much harder on them than it is for you.  Besides everyone processes things differently, so you must learn how to “coach” to everyone’s needs individually rather than one message for the same group.  Always be humble and allow yourself to be in less control, because it will make your healing process so much smoother.  Remember it is not all about you, you have responsibilities too!  Until next time, stay and be blessed.

~Dedicated to my husband, David Young

Kermilya’s Journey: God Keeps His Promises

1443795549884

September was such an incredible month for my family and I! On September 5th at 11:15pm our sweet baby girl Madeline “Maddie” was born! She weighed 6lb 11oz and was 20 ¾”! God is so good and He is faithful! Every day I thank Him for our little one. There are days I look into her eyes and cry tears of joy…as she’s our little miracle! We now know that her birth was always in God’s plan, she just came in His timing. It’s hard when you’re in the midst of a storm (in my case PCOS diagnosis and difficulty getting pregnant), to remember that God’s will and plan for our lives is better than our own. Sometimes the sole purpose of God allowing us to go through adversity is for us to learn something, for us to fully trust in Him, and so that our testimonies can help others. In fact, I spent many days thinking of the testimonies of others to keep my faith intact.There were many nights I would cry myself to sleep. On those nights I’d remember all of the people God put in my path to remind me of His power. There were several challenges I had to overcome before I got pregnant. I will share those details later.

The power of prayer is amazing! Once I surrendered my diagnosis to the Lord (December 2013), I prayed for my baby (January 2014). I didn’t just ask for a baby, I prayed a specific prayer. I asked God for natural conception, a healthy pregnancy, healthy weight gain, natural labor and delivery, successful nursing, and a plan for financial stability with our new addition. Everything I asked for has come into fruition, and I give God the glory! Don’t be afraid to ask God for what your heart desires! He’ll give you what you need when you need it. 

My husband and I are  just now settling into being new parents. I’m enjoying motherhood, it has been a blessing! I do things that some say “spoil” her, but I’ve waited a long time for her. I want to love on her and will do anything for her…she’s my heart! My husband adores her too! I love watching them together! She looks just like him too…I was clearly just the vessel! My world is alright with these two!

With our new addition arriving, I did not get a chance to post about PCOS (Polycystic Ovarian Syndrome) awareness month. PCOS awareness is acknowledged in September. It is very important to me to spread awareness and to be an advocate for myself and for other women. For more information about PCOS go to www.pcosaa.org and www.pcosnutrition.com.

Christina’s Journey: Phase 3

image

The next phase will be based on a holistic approach versus linear. Dealing and having a chronic illness, your whole thought process has to change because you will become your disease.

After I had finished the last treatment, ICE, I began feeling like myself again.  Some time had lapsed and the cancer became even more stubborn. I had a new port placed in my chest for my new treatment plan. The port was very painful when the doctors put it in and I was awake during the whole procedure. I definitely do not want to go through that again. The new port will allow for the nurses to retrieve healthy bone marrow cells for my stem cell implant. When they would retrieve the bone marrow I was hooked to a machine similar to a dialysis machine for 4 hours. They pumped me with liters of fluids and I could not use the restroom because the machine was not like your normal IV machine. After collection my case worker would call me to let me know if I had to come back for more collection or if it was enough the first go round.  Of course, me being me, it was not enough cells and I would have to repeat this tedious journey again. I never let my true disappointment show on my face. I tried my best to remain positive not for me but for my family and friends. I would feel defeated from all angles.  My human thoughts tried to overpower my faith and sometimes it was always a tug-a-war between the two. It is very important that you have a strong faith foundation because the Devil comes in all forms and elements and he will try to weaken you until you become your disease versus being an ambassador of your disease.

Disappointment is the biggest failure in life and those were my thoughts and feelings during that time of my treatment. You begin to become more analytical about your whole life and health plan because things are not going as they were planned or explained.  I felt like I was on damage control too because my family and friends, especially my husband, were becoming more frustrated. It had been over a year since my fight began at that time and I knew there was something bigger arising, God.  Everyone will not embrace and/or see everything holistically. Some individuals take the linear approach, which can be crippling but our natural way of processing information. The moral of this phase in my process is that everything as a whole is linked together for some reason and everything will not be linear (a,b,c, and etc.). If that was the case life would be boring and there would be no true reason for our existence. Try to be a holistic thinker today instead of linear. There is a time and place for both but go beyond your comfort zone, that is the only way you will truly be healed. The sign of you being healed is when you can read and/or write back on your life and have no sadness or pain, but happiness because you made it!

Christina’s Journey: Phase 3

image

The next phase will be based on a holistic approach versus linear. Dealing and having a chronic illness, your whole thought process has to change because you will become your disease.

After I had finished the last treatment, ICE, I began feeling like myself again.  Some time had lapsed and the cancer became even more stubborn. I had a new port placed in my chest for my new treatment plan. The port was very painful when the doctors put it in and I was awake during the whole procedure. I definitely do not want to go through that again. The new port will allow for the nurses to retrieve healthy bone marrow cells for my stem cell implant. When they would retrieve the bone marrow I was hooked to a machine similar to a dialysis machine for 4 hours. They pumped me with liters of fluids and I could not use the restroom because the machine was not like your normal IV machine. After collection my case worker would call me to let me know if I had to come back for more collection or if it was enough the first go round.  Of course, me being me, it was not enough cells and I would have to repeat this tedious journey again. I never let my true disappointment show on my face. I tried my best to remain positive not for me but for my family and friends. I would feel defeated from all angles.  My human thoughts tried to overpower my faith and sometimes it was always a tug-a-war between the two. It is very important that you have a strong faith foundation because the Devil comes in all forms and elements and he will try to weaken you until you become your disease versus being an ambassador of your disease.

Disappointment is the biggest failure in life and those were my thoughts and feelings during that time of my treatment. You begin to become more analytical about your whole life and health plan because things are not going as they were planned or explained.  I felt like I was on damage control too because my family and friends, especially my husband, were becoming more frustrated. It had been over a year since my fight began at that time and I knew there was something bigger arising, God.  Everyone will not embrace and/or see everything holistically. Some individuals take the linear approach, which can be crippling but our natural way of processing information. The moral of this phase in my process is that everything as a whole is linked together for some reason and everything will not be linear (a,b,c, and etc.). If that was the case life would be boring and there would be no true reason for our existence. Try to be a holistic thinker today instead of linear. There is a time and place for both but go beyond your comfort zone, that is the only way you will truly be healed. The sign of you being healed is when you can read and/or write back on your life and have no sadness or pain, but happiness because you made it!